CHARITY/MDF

THE S:AAB CONVENTION CHARITY

 
 
 
The 20th Anniverssary S:AAB convention will be donating 100% of profits after operating costs to the 
Myotonic Dystropy Foundation.
 
ABOUT THE CHARITY...
 
 
Myotonic dystrophy (DM), the most common form of muscular dystrophy, affects as many
as 1 in 2,500 people worldwide. DM is a multisystem, inherited disease and symptoms vary
widely, typically taking up to 7 years to diagnose.
 
A variety of tissues and organs may be affected: the heart, lungs and eyes, as well as any
other muscles in the body.  Deterioration of bodily functions can continue for decades -
how slowly or swiftly it occurs varies from person to person.

DM can be mentally and physically debilitating and symptoms worsen with each generation. 
There is currently no treatment for DM, but drug trials are now underway thanks to advocacy
by the DM community and the Myotonic Dystrophy Foundation. 
 
What is the Myotonic Dystrophy Foundation (MDF)?

MDF’s mission, “Care and a Cure,” is to enhance the quality of life of people living with
myotonic dystrophy (DM) and advance research focused on treatments and a cure.
It is the world’s largest DM patient advocacy organization, and the only organization
in the U.S. focused solely on DM. We bring the patient perspective to the core and
advance the work of researchers, policy-makers, health care providers and drug developers.

MDF relies on individual donations to pursue its mission mobilizing resources toward
effective management, treatment, and eventually a cure for Myotonic Dystrophy through
education, advocacy, research, and hope. 
 
For more information about Myotonic Muscular Dystrophy, please visit the web site of the 
 
The Myotonic Dystrophy Foundation
 
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